PCDH19 Suisse Association

Promotion of medical and scientific research

PCDH19 Suisse, established in November 2021, is a non-partisan and non-denominational association primarily active in raising funds entirely donated to the search for a cure for people affected by the rare genetic mutation called PCDH19. Currently, there are few underdiagnosed cases of PCDH19 reviewed in the world. However, we are confident that by spreading information to competent medical figures, more cases will receive the right diagnosis, allowing targeted care for each case. It is therefore our duty to promote information, in order to give girls affected by the disease an answer.